"No. You will not," I said.
"Well, she could have breathing problems, and I'm sure you want the best for your baby," he continued.
"Yes, I want the best for my baby. She'll be staying with me or we'll go to a different hospital," I said, but did not shout.
"But you see, when babies are born early, there are all sorts of problems that can happen
"That's fine. If she's not well, I want you to take her and care for her. If she is well, she's staying with me. This is not up for discussion."
"But, we have to monitor her."
"You'll monitor her while she's with me."
"But she'll have to be in the NICU."
"She can go to the NICU if she's not well, otherwise, she'll be with me."
"Your husband can be with her."
"My husband can't nurse her. She needs to be with me if she's fine."
"I'm going to go talk to someone."
So began the ridiculous several hour argument with... I lost count... hospital staff members. Hospital protocol. Fine, if she's got problems. But she might have problems. Fine, take care of her if she has problems. But she's going to be 4 weeks early, she might need assistance. Fine, give her all the assistance she needs, but only if she needs it. Otherwise, she's staying with me.
Hours and hours. At least 5 different people, doctors and nurses. I'm pretty sure it was more.
We had nothing packed. We had no plan. The night before I had decided, finally, to give up with trying to get her to turn and just schedule a c-section. That evening (Tuesday) I actually thought
All was going well until the idiot nurse decided to try and tell me they were going to take my baby from me for 24-48 hours. What a time for me to have to go into hard ass mode. I do it fine when it's something I care about, but, it was exhausting. Knowing when to kiss someone's ass, knowing when to be so firm it's scary to some people, knowing when to say "I need to talk to your supervisor," etc. Knowing the staff out there will be talking about the drama, the difficult patient, etc. It's very, very exhausting. I just wanted to meet my new daughter.
Well? Guess what? In all of those hours, through all of those people, it turns out no one -- not ONE person -- thought to mention that as soon as I was well enough to move around (wheelchair or whatever) I could go be with her in the NICU. That I'd be able to hold her and nurse her. No one mentioned that. No one thought it important to say that while Josh could be with her every second, I could, too, as soon as I was able.
What the freaking fucking holy hell stupid ass miscommunication. Our room full of people (Josh, Maya, Brenda (midwife), Maureen (midwife), my parents) all heard it the same way I did. Not one of us ever got the sense that they were saying anything but, "The baby will go to the NICU no matter what and you will not see her until she's out." It sounded crazy at the time, but the staff were so dreadfully committed to hospital protocol the idea that anything about this was reasonable didn't seem possible.
Before I went in for the surgery we had it agreed that the NICU nurse who was responsible for deciding how well Althea was after she was born would not *assume* she'd go to the NICU, bu
The surgery was easy enough. I didn't puke from the anesthesia which was nice. They also actually showed her to me as soon as she was out which they didn't for Maya. I was hit with my love for her on that first look. She was covered in blood and goo, and I loved her. Of course, it takes a few days for the love to sink in, but this was a nice surprise.
When Althea was born, at 5lbs 15oz (why does everyone always ask about and report a baby's weight?), she did have some troubles. Josh was with her for every second of the evaluation and beyond. I don't remember what the troubles were, but they involved not breathing right and something else. They brought her to me and I held her, though I didn't try to nurse her (my
Josh went with her to the NICU where they attached her to heart, oxygen, and breathing monitors and put her in an isolette (I think that's what they are called). After they finished with me (placenta out, given to the midwives, though I'm still not sure what of several options I'll be doing with it), they took me to the room to recover. It's a bit hazy. But, when they were going to transfer me to the "Mother and Baby" floor, the nurse who was helping me into the wheelchair told me we'd be going to the NICU immediately. Yay!
Flash forward to Friday evening and she was with us in our room at the hospital. Once she was with us, my milk really came in. Her nursing strength quadrupled. She gained back weight she'd lost since birth (even though it's typical for babies to lose weight in the first few days after they're born). And, mostly, we started to get to know her. When she was attached to all those tubes and wires, it was hard to bond with her. The nurses often made it awkward to be with her as much as we wanted, too. More on that later, though.

.






10 comments:
What an absolutely beautiful pair of daughters you have and what a wonderful mom you are. Fighting for your girls even before they're born.
Congratulations!
thanks so much for sharing this story. i am absolutely mystified as to how none of the hospital staff heard you saying, over and over, two simple and in no way unreasonable guidelines for althea's and your care:
1. no unnecessary treatments or procedures
2. i intend to be with althea, wherever we are, for every moment that doing so does not present a true risk to her health or mine
what's so hard about that?
i think what really sucks is that everyone probably had the same goal in that all wanted what was best for mom & baby. i think that health care providers are really fettered by how litigious our culture has become, and are unable to allow their common sense and compassion be their guides to healing because risk management officers have established protocols to prove that ABSOLUTELY EVERYTHING medically possible was done for the patient if tragedy does strike.
a retired doctor i know had a family member with appendicitis and took her to the emergency room. the doctor was retired and had limited health insurance coverage and income. it was, according to the doctor, a classic presentation of appendicitis that a third year medical student could have diagnosed with ease, but the hospital staff insisted upon a diagnostic screening procedure that cost several thousand dollars before even considering an appendectomy. the doctor refused the test and insisted that his family member have the appendectomy. the escalating levels of importance of hospital staff he had to speak to were ridiculous. i don't even know if he prevailed-- i think in this case the hospital might have "won" because of the time-sensitive nature of appendicitis.
anyway, i know that health care is an unbelievably complicated issue, and i don't pretend to have a lot of ideas for solutions. it's really sad and discouraging to me that it doesn't even seem possible to work out a solution in a single individual case, where two people have the benefit of the opportunity to communicate directly. if health care is so far fucked that individuals can't hear each other when they're in the same room, where am i supposed to find hope that corporations and governments can find a solution for the rest of us?
i guess that got a little ranty, but what i really want to say is that i'm so glad that you, althea, maya, and josh are in this world, and that you surely make it a better place than it would be without you. and i will once again thank you from the bottom of my heart for being willing to share it with us, popping vagina and all.
Congratulations.
The baby's fine and you're fine and what else matters?
Yay for you for standing up for her. And what a lovely picture.
Sounds like no one was listening. They get into auto-mode & can't get out of that.
In any case, a happy ending :) Congrats!
Congrats, Heather--and Josh and Maya. I am so glad that you are all healthy and that Althea is nursing so well. I'm also sorry (but not at all surprised) to hear about the protocol autopilot thing. That's just so many kinds of wrong.
The photograph is absolutely beautiful!
So happy for you.
Jen (momofsage)
Heather,
I was sorry to read about the hospital communication problems, but so glad to read that you and Althea are well and blossoming! Happy baby moon.
Cat
All's well that ends well, right?
That being said, it's terrible that you had to fight with your doctors/nurses/hospital staff. Sounds like they forgot that they're working *for you*.
Hey Heather- Thanks for pointing me to the story. Happy to hear Althea is doing so well now!
For weeks I've been wondering how this all went... never bothered to try and find your blog, m'dear! Thank you for sharing the story with the interested world. I'm sorry you had to deal with poor communication / administrative bullshit. We've all had these bullshit experiences, but you just hope they come at a time when you're in a good state to deal with them! But I'm so glad all went well in the end.
Post a Comment